Tuesday, January 29, 2008

Memory...all alone in the...hmmm...

I can't remember things lately. It's not just those little things, like forgetting where I put my keys, forgetting my lunch on my way out the door. Those things have been happening to me forever. In fact, my family members will tell you that this quality is quintessentially Leah. But it's the bigger things goofs or slips or blips that get me. Have you ever been stumped for the name of someone you've known for a decade? It happened to me the other day.

This did happen, but it doesn't mean that I've cognitively imploded. Eventually something comes back and I find ways to compensate, manage and generally make do but when those moments come they hit with a funny twinge. Sometimes I've learned to cover up so that no one ever knows that I had the slip. It's the times that I can't cover up that make me absolutely embarassed. I shouldn't be. It's a real phenomenon.

The other day I was contacted by someone writing a book about chemobrain.
My initial reaction was uh oh...no...who told you I was having chemo brain? Are people starting to talk? I thought I did a good job covering up the fact that I shampooed my hair with body scrub yesterday. WHO TOLD? just kidding. I rinsed it out, really.

The author interviewed me via phone about my own experience as a young adult. Ellen, if you're reading I love that you are doing this! It's such a wonderful idea for a book, finally recognizing a real issue of treatment so misunderstood by the public. When it is published you have my blogging and tapping fingers commissioned to promote it.

For years archaic information and popular opinion have allowed doctors to almost oversimplify and prematurely reassure patients "sure, you're brain is fine. What are you talking about?" Please note the word reassure is used lightly. Despite what survivors have been told over the years, that there "isn't any harm" from being poisioned to beat the beast, new research is telling us that the brain is impacted by cancer treatment. Hello? It's amazing how researchers finally get what patients have been telling them "anectotely" for decades. Thankfully, there are people like Ellen working diligently and passionately to tell that story.

Monday, January 21, 2008

Don't stop believing

Today I would like to honor courage.
Courage to make change...the courage to believe in dreams, even when it seems impossible.
Often the definition of courage seems to be interpreted incorrectly. Courage is not the entitled blessing of the famous, the infamous or the rich and privileged. In our lives, in our own journeys courage is always necessary to defeat the negative messages or odds stacked against us. A while back I spoke to you about a young man who I visited in the hospital who amazed me with his determination. He and his friend Michael set up a foundation called ZHope and it is among my top bookmarked sites. Zach wants to bike across the country to raise cancer awareness. How cool is that?

Though Zach has been too sick to attend our monthly young adult group meetings, I keep thinking of Zach's courage. Despite the road he has walked, his vision and his belief that he will achieve his dreams have inspired me. I believe he will do it.


Saturday, January 19, 2008

Kodak does it right

I was little once...through the technology of the Kodak Easy Share All in one printer with scanner (my favorite Christmas gift), I will share this retro photo with all of you. No, I am not paid by the Kodak company...or their official spokesperson...but I'd entertain offers.
Notes: The redheaded woman underneath the squirming petrified cowgirl is my mom. The aforementioned squirmer is my sister, Mary. The complacent and awkward cowgirl to the right is me. Old Tucson, Tucson Arizona circa early 1980s.

Friday, January 18, 2008

An answer to a question

Recently someone asked me why I hadn't started a blog while I was sick. The answer is two fold. Yes, I did start a blog during treatment. It was a private one that only friends could see, part of me wondered if I was ready to expose the real truth, the hell of treatment.
A lot of times I put on a smile and just said yeah everything was fine. My favorite line I'd use was "I'm hanging in there". I didn't update the blog frequently; it was when I was on the upswing that I would write something. Mostly because I could write funny. Yet, there were times I just couldn't laugh. I thought that if I did really tell everyone what was going on or share my real feelings they'd think I was weak. Now, as I join a legion of other bloggers all documenting their journey in and out of treatment I feel that it's important to share all that. Good and bad.
If I get comments here that you'd like to see those archived blogs...I'd consider posting them.

Thursday, January 17, 2008

Got to smell the roses here...

Yesterday I got caught in traffic...water main break off my exit. Traffic backed up for miles. Had I truly been tuned into the radio that I had on I would have been smart enough to get off before the jam started.
I forgot basically everything I was going to do this week. I realized I missed sending my aunt's birthday card. I forgot to send in my rebate check from a Best Buy purchase. I might have possibly even worn my socks inside out. I've been running around like a headless chicken for good reason.
And I forgot to mention something of importance to you faithful readers. Clean scan. Yup...another three months out and I am still cancer free according to those high tech images. With all the hassles of life and all the frustrations, I forgot to take a moment to tell you that everything once again is alright. It's like getting your driver's license renewed sort of...still okay to drive through life.

Monday, January 14, 2008

Politics...feeling overwhelmed? Check this out

Iowa and New Hampshire are so last week.
Now it's time to think about what you want in a candidate and with all the mixed messages, sensationalism and name calling...you are at a standstill. By saying this, I know I am taking a risk, but let's just say I feel our country would be safer in the hands of any of the candidates than I have felt its been in the last oh...say...seven years or so.
With that being said, I do not intend on playing 'eenie meenie miney mo' either. This is a highly important time for everyone to consider who can turn things around. Not that my political stance bears any weight out there but I was stymied. Repeat: I am not a pundit. So I decided to use a piece of really cool technology that my sister Mary sent me. Please do not think that it should be the litmus test for your voting but it's a fun way to see what they come up with. Who is your man or woman? Check here to see...
http://www.wqad.com/Global/link.asp?L=259460

Sunday, January 13, 2008

SAVE VIVY! but I'm off strike.

I might have enacted a strike in haste.
Number 1- One blogger on strike does not really have an effect. And I had no picket sign.

People just stopped reading my page. Heh heh
Much like the writer's strike, huh? Don't get me wrong, I absolutely support what the writer's are asking for. Without these talented writers how would we ever get the creativity and level of entertainment we have? It would be all reality all the time, basically.
However maybe some people are turning to alternative sources of entertainment. Maybe youtube is getting an influx of people watching things labelled grandma plays laser tag or squirrels gone wild. As an aside, do you ever get an idea in your head and think it's the most revolutionary idea EVER. Then you find someone else has thought of it. I thought squirrels gone wild would be a great name for a spoof...it is taken. If you feel like testing my theory there are about a gazillion so-titled videos.
Number 2- I don't know how to strike and I think I might have caused a backlash.
Pre-strike I was getting hits from as far as Japan, Germany and all of over. Now I get 2 hits a day. By the way Thanks Mom and Dad.

But I have to share with you that someone from Sandwich Massachusett
s is reading this. What a cool name for a town. I really hope you do community-tie in activities out there and fun with this. Do you do host themed eating events? Gosh I hope so.
I would like to give you a shout out and if you give this a visit again...I implore you to throw me an email and just comment on here. Tell everyone what life is like in Sandwich. A little google investigation led me to the fact that Sandwich is just outside Cape Cod.
Hey, this could be better than having a third grade pen pal or maybe even a crazy prision boyfriend. Okay maybe not the latter.
EPILOGUE:
PLEASE CONTINUE YOUR EFFORTS TO SAVE VIVY and the show SIDE ORDER OF LIFE.
The actress who plays Vivy, Diana Maria Riva even sent me an email thanking me for the support. If you are on facebook join the Save Vivy group. Myspace? Friend Vivy Porter.
This is the time to let Liftetime know. If you haven't seen Side Order, tell them you'd like a chance to see it because you've heard through the grapevine that you should be watching it.
Please follow this link to LIFETIME TV's comment board, register yourself and type in on the comment board. It doesn't have to be complex. SAVE VIVY will even suffice. http://www.mylifetime.com/on-tv/shows/side-order-life